Dawsonshire

Just one Dr.’s appointment short of the finish line!

Last Friday morning, I happened to have the tele on in the background and this segmant on a VSD surgery was aired on the Today Show. It is a wonderful story of a Cambodian girl who lived to be 9 years old with a large VSD, a lifespan that is very rare. She was brought to the U.S. to have the same surgery that Keanon did. It really touched me and put shivers down my spine – because the reality is, the surgery is “life saving” and I don’t ever want to forget that!

Keanon had his follow up appointment with his cardiologist on Friday. We went with positive thoughts that the fluid on his heart would be gone and that the steriod treaments had done the trick – and they did!Hurray! Keanon is on the home stretch. And boy does he know it – every 3 weeks of his life he’s had to see the Dr. and spend hours being monitored. He is ‘usually’ such an angel, sitting still for the techs having to do his Echo’s and EKG’s, flirting with the nurses and being so cooperative for the doc. This time though, he decided he was soooooooooo over sitting around in his diaper all day while people inspected him. He screamed his head off for a good part of the Echo and wouldn’t calm down until just before Dr., gave his positive report. I don’t blame him! We’ve all have enough of this business, so thank goodness Keanon has a clean bill of health! And ultimately, what that behavior shows is that he’s now got all the energy in the world to get really fired up – that’s a good sign.

He gets to take a break for 4 whole weeks before he has to go back to the cardiologist. In the mean time, he will be weened off of his last drugs and should be able to be without any symptoms of his defect. He still has leakage around where the patch is, which is totally normal and not expected to close up for 6 months. With that, he was eligible for one last Synagis shot, this time in both legs since he’s gained weight and needs two doses. The shot will continue to protect him on the tail end of the cold and flu season from RSV.

KJ is just doing so well and is still an angel baby. Playing a lot, trying to crawl (mostly scootching backwards), sleeping and eating. Did I mention eating! Holy Moly – he is eating like a champ and has gained a lot of weight. Granted, he’s still not even on the charts for his age, but to us – he looks like a huge, chubby, healthy baby! We are so happy with his progress.